So I was diagnosed with Systemic Lupus 11 years ago, I’m now 23. Through out my teens, I had ITP(platelet deficiency) and survere arthritis, that was the extent of my lupus. I was on Prednisone for 8 years, along with plaquanil, metholtrexate randomly. When I was 18, I finally decided to get my spleen out to cure my ITP. Big mistake, from that surgery and a freak coincidence of ovarian cysts rupturing a week later and having to get the fluid sucked out I was bed ridden and developed my first blood clot. A week after that I had my first pulmonary embelism. I was in and out of the hospital for 10 months after that with hemolitic anemia, more blood clots and more PE’s. I ended up being allergic to the blood thinner heparin they were giving me. I went through several doctors and hospitals at this time. A couple months later I was back to a healthier me, I was able to work for a year but ended up getting sick again. I’ve been out of work for a year and a half and just actually got declared disabled. But the past few months I’ve been really sick again, servere arthritis, hair loss, extreme fatigue, pain from my chronic blood clots, and more. I’ve been put ..cept about 5 months ago to supress my immune system, but all the while it has made me nautious everyday. I’ve lost 40 lbs in the last couple of months. The doctor still has me on it, and my blood levels have gone back down, so now he’s putting me on plaquanil as well. Both of my doctors sent me to a pain managent doctor on monday, I payed my 35 dollar copay to be in there for 2 minutes and for him to tell me to continue myyoga. (great! thanks!) He said he couldn’t help me because im going to have lupus my whole life and he will only treat localized pain not chronic pain...so back to the doctors I go (more copays) to tell them that doctor didn’t want to help. I just feel like im spinning circles and getting no where! To make matters worse, being couped up in my house not being able to socialize, work, etc. has gotten to me. I know things will get better, but its hard to see past these clouds right now. errr. thanks for reading and listening. :-/